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Emily’s Entourage


Emily's Entourage accelerates research and drug development for the final 10% of people with cystic fibrosis (CF) that do not benefit from existing mutation-targeted therapies. By providing critical leadership and coordination, Emily's Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite lifesaving treatments and a cure for the final 10% who are waiting with bated and fading breath.

Patient Advocacy Organization


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