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Share and Care Cockayne Syndrome Network


Share & Care is a compassionate and experienced network of researchers, specialists, patients, and families. For over 40 years, we have proudly served the Cockayne syndrome (CS) and Trichothiodystrophy (TTD) communities with medical resources, financial assistance, diagnostic tests, patient advocacy, research opportunities, and a deeply caring support group. Our work has helped patients receive better, informed care as we educate medical experts all over the world on the unique procedures for CS and TTD.

Patient Advocacy Organization


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