
LandOnACure Foundation LandOnACure was founded to support families living with rare genetic disorders. Rare disease is one that affects less than 200,000 people worldwide. This means there is little to no medical information, or viable treatments. Our son, Landon, was diagnosed with an ultra rare genetic disorder just after his first birthday. His disease is caused by mutations in the TBCD Gene; which affects muscle development and brain development. There are no doctors or specialist studying TBCD; nobody could help us understand what Landon was going through, or how long he would live. LandOnACure was founded to help families in our position; those faced with a child suffering and no resources to help them survive. Many kids with TBCD don’t live past the age of 4 - so we are racing against the clock to find a treatment. Landon is now 8 years old; he is unable to walk or talk, but he is getting stronger! Everyday, Landon wakes up with a smile and works extremely hard to independently use his legs and communicate. Landon’s determination and progress is beyond inspiring! LandOnACure is dedicated to finding a treatment for all children affected by TBCD, and springboard to help all genetic disorders. Our mission is to improve the quality of life for TBCD patients through the research and development of gene therapy and drug therapy treatments, advanced therapies and a strong support system. With your help in spreading awareness and raising money for medical research; we WILL land on a cure! Patient Advocacy Organization

LandOnACure Foundation

LandOnACure was founded to support families living with rare genetic disorders. Rare disease is one that affects less than 200,000 people worldwide. This means there is little to no medical information, or viable treatments. Our son, Landon, was diagnosed with an ultra rare genetic disorder just after his first birthday. His disease is caused by mutations in the TBCD Gene; which affects muscle development and brain development. There are no doctors or specialist studying TBCD; nobody could help us understand what Landon was going through, or how long he would live. LandOnACure was founded to help families in our position; those faced with a child suffering and no resources to help them survive. Many kids with TBCD don’t live past the age of 4 - so we are racing against the clock to find a treatment. Landon is now 8 years old; he is unable to walk or talk, but he is getting stronger! Everyday, Landon wakes up with a smile and works extremely hard to independently use his legs and communicate. Landon’s determination and progress is beyond inspiring! LandOnACure is dedicated to finding a treatment for all children affected by TBCD, and springboard to help all genetic disorders. Our mission is to improve the quality of life for TBCD patients through the research and development of gene therapy and drug therapy treatments, advanced therapies and a strong support system. With your help in spreading awareness and raising money for medical research; we WILL land on a cure!

Patient Advocacy Organization