
debra of America debra of America's mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. We envision a future where the burdens of EB are eased and eradicated, empowering those affected to lead lives free from the challenges of EB. Patient Advocacy Organization

debra of America

debra of America's mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. We envision a future where the burdens of EB are eased and eradicated, empowering those affected to lead lives free from the challenges of EB.

Patient Advocacy Organization