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Dravet Syndrome Foundation


DSF is a nonprofit organization that acts as a convener of the Dravet syndrome community. Since our founding in 2009, we have engaged and educated all of our community stakeholders – patient families, clinicians, researchers, industry partners, and others – to envision and fight for better treatments, and one day a cure for Dravet syndrome. We believe that efforts to improve the quality of life for those affected by Dravet syndrome must include the patient voice and experience to help guide outcomes. DSF is proud to be the largest non-governmental funder of Dravet syndrome research, worldwide.

Patient Advocacy Organization


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